SCD Web Library Redesign Survey - Aug. 24, 1999
The Participant Instructions were:
We are requesting your input in re-designing this website, which we hope to launch under a new domain that we have reserved. Your responses to the following questions will help us prioritize the areas requiring changes. It might look long, but only the first six (6) questions are "required". Use the "Submit" button at the bottom when finished.
Survey Results
1. How many times have you visited this website?
A) Ballot
Method: Open-Ended
Options: Maximum Number of Characters: [20]
B) Text Responses
Total Number of Respondents (N): 29
Number of responses to this question (n): 29
1. quite a few times
2. Around 20 times
3. about 20
4. 20-30 times over pas
5. 3-4 times. I am new
6. approx. 25
7. 33
8. tens
9. 15
10. 6
11. Approx 10 times
12. 10
13. I visit this site o
14. a dozen or so
15. 15 times approx
16. 10
17. 12 or so
18. 1
19. several
20. first time
21. 1
22. 50 times
23. 25 - used to visit
24. 25
25. 20 or more
26. 20 or more
27. 6
28. 0
29. over 30
2. How often do you visit this website?
A) Ballot
Method: Multiple Selection
Options: Maximum Selections: [1]
Descriptions: Choose one.
Number of Choices: 4
B) Results Spread
Statistics
Total 4.00
N 29
Table Sorted By Total
|
Choices |
Total |
|
Monthly |
11 |
|
Often - daily or weekly |
9 |
|
Not Often - every few months or less |
5 |
|
I have never been here before taking this survey |
4 |
3. If more than once, which part of the website do you visit most frequently?
A) Ballot
Method: Open-Ended
Options: Maximum Number of Characters: [200]
B) Text Responses
Total Number of Respondents (N): 29
Number of responses to this question (n): 29
1. the recipes section
2. Recipes and Testimonies
3. I've visited the recipes section the most. After that, I have searched on certain topics and read people's list emails.
4. recipe section
5. recipes, chat
6. articles
7. recipes
what's new
8. advice
q&a
the rest
9. receipes
success stories
10. recipes and exploring other areas
11. Recipes. I am also on the SCD list (Long Island, I believe) so I read the digest every day
12. RECIPES,LETTERS AND TESTIMONIALS AT FIRST.
13. When I started the diet I visited more often daily or weekly, but now that I have a routine. I visit about once a month. Now I visit recipes most often.
14. I usually visit a part that interests me at that specific time- today it was on meds.
15. Where to get needed things to follow diet.
16. NOT SURE
17. I usually look at something I haven't read before.
18. diet
19. recipes, questions to elaine
20. first visit
21. x
22. testmonials, foods, Dr. Lutz
23. Recipes and research. Am on the SCD listserv.
24. a
25. Reminders of food that is allowed.
Letters from hopeful people.
26. Reminders of food that is allowed.
Letters from hopeful people.
27. recipes, archives
28. THIS IS MY FIRST TIME!
29. I've read just about everything on the site. Now I review "whats new". I also check out the recipes ocassionally. What I can't figure out is how to view the new letters. I signed up for the maili
4. What area(s) of the website should get top priority during our redesign?
A) Ballot
Method: Multiple Selection
Options: Enter Text for Last Choice
Maximum Selections: [2]
Descriptions: Choose up to two items.
Number of Choices: 5
B) Results Spread
Statistics
Total 5.00
N 29
Table Sorted By Total
|
Choices |
Total |
|
Other: (please specify below) |
12 |
|
Content: Instead of unedited letters, I'd rather read some edited information. |
11 |
|
Links: Make it easier to find other resources online (book stores, other web sites, etc.) |
9 |
|
Navigation: As it is now, it is too difficult to find what I am looking for. |
6 |
|
Layout and Design: As it is now, it is too primitive and messy. |
5 |
C) Text Responses
1. Establish a chat room where folks actually communicate. Although I've never been in a chat room, I found it annoying that when I tried to get in the prior SCD chat room, no one was there.
2. email list . . . . is it possible to have an on line chat/email list rather than getting emails in our own mail box? In other words, can't we just go to the site & view the messages in a forum?????
3. A good site search facility
4. Receipes
other peoples diets and experiences
what has worked and not worked
5. I just thank you for providing this site!
6. I haven't found too much trouble navigating the site, but I do find that I have to scroll through a lot of recipes to get to the one that I want. Perhaps this could be improved.
7. The web search engines did not locate this site when I type specific carbohydrate diet or Breaking the vicious cycle etc. It was more by accident then anything that I found it. It would be great if more people were able to find it with any of the generic queries. I'm not sure how this could be accomplished?
8. none
9. like what ive seen so far
10. having problems : i can enter web pagebut several of the leads come up with blank screen.
11. Used to present design but choices could
be further categorized--less information
on the main page.
12. Make it easier to find the current letters. Also, some websites have counters that show how many hits they have. Many of these sites appear to be non-profit. Have you looked into this? There is leverage in numbers. Following on this idea see below.
5. Do you have any specific advice or suggestions to how to improve the site?
A) Ballot
Method: Open-Ended
Options: Maximum Number of Characters: [400]
B) Text Responses
Total Number of Respondents (N): 29
Number of responses to this question (n): 29
1. make it easier to find stuff, make it look nicer.
2. Yes, see #4 comment.
3. Nope, but thanks for doing this!
4. a list of drs. and their address/phone numbers that people on the list currently visit and have found to be scd-supportive or tolerant.
i request this since several doctors have been mentioned/recommended by list members over time ---- and the creation of a list of these doctors - may be helpful to members who are moving to new homes/visiting new places and need to see a dr.
thanks for putt
5. see above
6. add information on other problems which sometimes have to be addressed in addition to being on the SCD in order to have a complete remission or cure (such as parasites, candida, vitamin deficiencies)
7. not at this time
8. A good site search facility
International information where available, e.g. where to find SCD-safe products in other countries
9. I think there should be scheduled chat times.That way we can talk with people real time, once a week or so.
#a13#
10. How about an area dedicated to the additional SCD legal foods that Elaine G. has approved but are not found in her book? I know it would be small, but, each item can add a world of diversity. Also, maybe a site with statistics?
11. NO
12. NO
13. An internal search engine for the recipes.
14. cant think of any right now
15. I found the site very helpful as is. I was able to learn a lot of things about the cooking and supplies.
16. My biggest concern is that people write their own ideas about do's and don'ts which are not always correct. Some of the recipes have non allowable foods.
17. No.
18. no
19. better "search" engine. easier to get info all info listed about a particular food, topic,etc.
20. not at this time
21. I would like to obtain new recipes on SCD all I get is blank page. I have used the recipes in the book. i have tried some of yourother topics & got blank pages. Can you help?? thank you.
22. I've enjoyed it, but you could remove info on old conflicts concerning scd lists.
23. Break down the menu structure
24. >> Have contact information for people
interested in talking to SCD adherents in
their local area. Perhaps the nucleus
of informal meeting/support/social groups.
25. The homepage should be more streamlined, with simple, clear access points. Site search engine a must keep. Positive, upligting letters amust, but the volume of letters is too tedious. The core content should be distilled and represented statistically or as excerpts.
26. The homepage should be more streamlined, with simple, clear access points. Site search engine a must keep. Positive, upligting letters amust, but the volume of letters is too tedious. The core content should be distilled and represented statistically or as excerpts.
27. not sure
28. NO
29. I would like to see Dr's, products, sources, stores, restaurants, caterers, and testimonial letters from food producers, etc. that are compatible with the diet. If they are easily accessible from the scd start page it would make it easier to get started on the diet and stick to it. I took me hours to find the information on yogurt makers and where to buy them.
6. What disease(s) have you been diagnosed with?
A) Ballot
Method: Multiple Selection
Options: Enter Text for Last Choice
Maximum Selections: [3]
Descriptions: Choose up to three items.
Number of Choices: 7
B) Results Spread
Statistics
Total 6.00
N 29
Table Sorted By Total
|
Choices |
Total |
|
Crohn's Disease |
13 |
|
Ulcerative Colitis |
11 |
|
Other (please specify below) |
7 |
|
IBS (Irritable Bowel Syndrome) |
6 |
|
Diverticulitis |
1 |
|
Celiac Disease |
1 |
|
Cystic Fibrosis |
0 |
Other: Text Responses
1. uterine cancer
2. non-specific colitis
3. pernicious anemia
4. Autism - crohnic diarehha
5. at one time I was diagnosed with crohn's colitis
6. Hypothyroidism
7. chronic inflammation of small intestine and pancreatitis (produces no enzymes), food intolerances
7. Where are you from?
A) Ballot
Method: Multiple Selection
Options: Allow Bypass
Enter Text for Last Choice
Maximum Selections: [1]
Descriptions: Choose one
Number of Choices: 4
B) Results Spread
Statistics
Total 3.00
N 29
Table Sorted By Total
C) Text Responses
1. Originally from Chile. Now living in London, UK
|
Choices |
Total |
|
North America (US, Canada, Mexico) |
25 |
|
Europe |
1 |
|
Other (please specify below) |
1 |
|
Pacific Rim (Asia, Australia, New Zealand..) |
0 |
8. Which web browser do you use most often?
A) Ballot
Method: Multiple Selection
Options: Allow Bypass
Enter Text for Last Choice
Maximum Selections: [1]
Descriptions: Choose one.
Number of Choices: 4
B) Results Spread
Statistics
Total 4.00
N 29
Table Sorted By Total
|
Choices |
Total |
|
Microsoft |
10 |
|
Netscape |
9 |
|
AOL |
6 |
|
Other (please specify below) |
2 |
C) Text Responses
1. Prodigy
2. lycos, infoseek
9. Your age:
A) Ballot
Method: Multiple Selection
Options: Allow Bypass
Maximum Selections: [1]
Descriptions: Choose one.
Number of Choices: 4
B) Results Spread
Statistics
Total 3.00
N 29
Table Sorted By Total
|
Choices |
Total |
|
26-40 years |
14 |
|
I'm over 40 :-) |
12 |
|
0-15 years |
2 |
|
16-25 years |
0 |
10. How long have you been following the Specific Carbohydrate Diet?
A) Ballot
Method: Multiple Selection
Options: Allow Bypass
Maximum Selections: [1]
Descriptions: Choose one.
Number of Choices: 5
B) Results Spread
Statistics
Total 5.00
N 29
Table Sorted By Total
|
Choices |
Total |
|
Less than 1 year |
14 |
|
More than 1 year but less than 3 years |
8 |
|
I have not started yet |
3 |
|
More than 3 years |
2 |
|
I used to follow the SCD but I am not following it now. |
1 |
11. If there were to be a follow-up survey, what questions should be asked in it?
A) Ballot
Method: Open-Ended
Options: Allow Bypass
Maximum Number of Characters: [400]
B) Text Responses
Total Number of Respondents (N): 29
Number of responses to this question (n): 8
1. how well do you adhere to the diet? what drugs are you taking? what drugs did you take before the diet? what condition were you in when you started the diet?
2. I'd be interested in people's experiences on the diet at 3 mos., 6 mos., 1 yr.
3. How about trying to gather statistics associated with the diet: remission and how long in remission; relapse(s) how long on diet, was it possible breach of diet that caused relapse; lessening of symptoms. Stuff like that...???
4. how long has a person been suffering from this disease/condition?
5. Do you take vitamin or mineral supplements?
If so, list supplement and dosage.
Do you use any alternative treatment other than the SCD? If so, which treatment?
Have you had to fine-tune the SCD?
If so, how?
Were you diagnosed with IBS prior to a diagnosis of IBD?
Have you received any mis-information about the SCD from your MD? If so, what were you told?
Do you have a family history of IB
6. weight loss on this diet for someone who is already quite underweight. (5'8" 104lbs)
7. Dr. Lutz allows carbohydrates in limited amounts in sauces, etc., more than the SCD. Have you tried this moderate approach? Does it bring back symptoms?
8. What types of activities/supplements people
use to improve health in addition to the SCD--ex/ yoga, running, Chinese medicine, more sleep, more sun, etc . .
12. Would you like to help somehow? Give us your email address, and tell us how you would like to help.
A) Ballot
Method: Open-Ended
Options: Allow Bypass
Maximum Number of Characters: [200]
B) Text Responses
Total Number of Respondents (N): 29
Number of responses to this question (n): 11 (removed from web copy of report. Thanks to all those that have volunteered to help! I'll be contacting you shortly. -Mike)