SCD-list November 1997 SCD-list Sun, 16 Nov 1997 Volume 1 : Number 102 In this issue: Re: Tactile sensitivity Re: apple sauce Persimmon Re: Ginseng etc. RE: Tactile sensitivity Re: Re: Ginseng etc. Re: SCD-list V1 #101 Re: SCD-list V1 #101 Re: Tactile sensitivity Re: SCD, 6MP and fisulas RE: Tactile sensitivity Follow up to Amalgam survey RE: SCD, 6MP and fisulas -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Sat, 15 Nov 1997 21:17:29 -0700 From: "William Laing" <wlaing@telusplanet.net> To: <SCD-list@longisland.com> Subject: Re: Tactile sensitivity Message-ID: <01bcf246$8d870580$LocalHost@default> -----Original Message----- From: Pat Sullivan <psullivan@saleslogix.com> To: SCD-list@longisland.com <SCD-list@longisland.com> Date: Saturday, November 15, 1997 1:40 PM Subject: RE: Tactile sensitivity >SCD MAILING LIST >Moira, snip > Also, SCD tends to be a fairly low residue >type diet so it will not cause there to be huge amounts of stool. At >least it does not with me. Perhaps, others can comment on this too?? snip >Whatever, I would encourage you to fell encouraged with the progress >that you are experiencing with your son! Hang in there! > >Pat Pat and the group. Thank you Pat for inviting comments on the above statement, it allows me the opportunity to reply to the subject without feeling I am being controversial. Shortly after reaching a point where the Ulcerative Colitis showed signs of improvement and even to this day in full remission I am always amazed at the large volume of stool that I produce on the SCDiet. I would estimate some thing in the order of three times the volume as when pre SCD days. With regularity to the hour once each day, absolutely no discomfort and easily passed. Well formed but not as a hard material . I remain on the SCDiet to-day, (other than one small square of chocolate some days) I eat more than my share of nuts, approx 2 teaspoons of honey a day perhaphs 4 to 6 apples 2 or 3 bannanas, some days oranges. But the main stay is mixed vegetables. I alternated between frozen for one meal then for the next meal I will eat fresh chopped up vegetables cooked up in olive oil. All types of squashes, meat , chicken, or fish every day . I do notice the stool will reflect any changes I might make to the above diet. eg. if I eat a larger amout of meat than I would normally or unbalance the fruits and vegetables. My bads habits ..... I drink 3 or more cups of weak coffee a day and other than the liquid in it I dont need it and may have to stop. I do feel great most of the time . I am wondering if any one else in the group has found the same? William ------------------------------ Date: Sun, 16 Nov 1997 00:20:24 -0500 (EST) From: Jmrsy@aol.com To: SCD-list@longisland.com Subject: Re: apple sauce Message-ID: <971116002024_-894757901@mrin86.mail.aol.com> We've been enjoying Mott's natural applesauce regularly. Sharon ------------------------------ Date: Sat, 15 Nov 1997 23:22:08 -0700 (MST) From: Sheila Shea <ratany@azstarnet.com> To: SCD-list@longisland.com Subject: Persimmon Message-ID: <v03110720b093c5b7cd50@[169.197.33.134]> >Sheila, >You mentioned making a custard from persimmon pulp. Do you have this >recipe to share? I absolutely LOVE persimmons and would appreciate this >recipe >and any others for persimmons. Think you can freeze persimmon pulp? >Linda Sheila: Sorry for the long delay. I was referring to taking the persimmon pulp raw (my dietary preference) and whipping or pureeing it. Then setting it in a crust of raw ground brazils, walnuts, or whatever nut agrees with the person. They are so good it is not worth adding seasoning as far as i'm concerned. I did find some cooked recipes from friends and both contain sugar and one contains flour. If you know how to redux the sugar with raw honey, (the flour isn't a problem you can use almond etc), let me know and I will post them. also they have rum in them and would need a sub for that or leave it out. ************************************************************************ Kind Regards, Sheila Shea Tucson AZ------------------ Interested in Intestinal Health and Colon Hydrotherapy issues. http://www.sheilas.com Listserv on Intestinal Health now available. Go to: http://listserv.azstarnet.com/cgi-bin/lwgate/INTEST_HEALTH/ to subscribe or unsubscribe ************************************************************************ ------------------------------ Date: Sun, 16 Nov 1997 08:49:30 -0600 From: "Jim Prousalis" <j-pro@mindspring.com> To: <SCD-list@longisland.com> Subject: Re: Ginseng etc. Message-ID: <199711161349.IAA05156@camel14.mindspring.com> I have been taking Ginkgo for about 6 Months and no problem! ------------------------------ Date: Sun, 16 Nov 1997 05:57:05 -0800 From: Mary <moira@megamed.com> To: SCD-list@longisland.com Subject: RE: Tactile sensitivity Message-ID: <2.2.16.19971116065443.262f6f3c@megamed.com> Dear Pat, Thanks SO MUCH for the info about calcium lactate, I read in Elaine's book that children/babies may need extra calcium, so I gave him this, never even thinking about lactose! Thanks so much. I think now that you mention it she recommends calcium AEP in the book, will look for it. I need some advice on vitamins/minerals. Should I get the vitamins from Freeda, or is there a brand available at the health food store? Also, do most of you find you need a B12 shot, as in the book she mentioned that some people do need a boost of their B12. Does anyone have any brands of calcium (AEP) that they recommend. How do you know if you need a B12 shot? As far as soil based and olive leaf extract, it was my understanding that Elaine was NOT for them. It was my feeling she was very strongly against them. Some of the parents of autistic kids are having great results with soil based organisms, they replace the yeast and bad bacteria in the intestine, so I am very torn on this issue. My best friend up in Washington is having great results, as are others. She gave her son SBOs and then tested his urine and his yeast and bad bacteria were nearly gone. I am wondering if our kids have had SO MANY antibiotics that they may need a boost from the soil based to get rid of the dysbiosis, and then MAINTAIN the new flora with Elaine's diet. What does the List think? Do you think it is ok to give him some garlic, I tried some raw garlic myself and wow, talk about die off, I only took about half a clove and had MAJOR die off the next day! I read in a book on garlic that aged garlic is better for candida, do you know what kind to get? His stomach is distended and hard like a balloon, even though he is very thin. My other kids have soft stomachs/abdomens. Would this be an indication of yeast or bad bacteria or both?? I KNOW my son is not autistic, he has incredibly bad dysbiosis due to yeast, bacteria, or, some research is showing, the MMR vaccine invading the lymph nodes of the colon and damaging it. In any case, I need to get to the bottom of this dysbiosis. Soil based organisms are also curing Crohns disease, so my friend in Washington State said. In case you guys did not know this, the so called "autism" diagnosis is absolutely booming, some say as a result of very early and very intensive vaccinations., which disrupt the normal immune system,which then predispose the baby to infections, which lead to antibiotics, which lead to dysbiosis, which leads to toxins in the blood affecting the brain, etc. If anyone has any advice, I am kind of desperate, my son is stimming (obsessing) on fans again. Could my giving him calcium lactate have screwed up the diet enough to make him worse?? What happened to the article on dysbiosis, is it coming? Again thanks, Moira, ------------------------------ Date: Sun, 16 Nov 1997 14:53:33 -0500 (EST) From: RosaKuhn@aol.com To: SCD-list@longisland.com Subject: Re: Re: Ginseng etc. Message-ID: <971116145331_288202298@mrin53.mail.aol.com> Thanks for the reply. I am going to give it a try. My memory is almost non-existant. Rosa ------------------------------ Date: Sun, 16 Nov 1997 16:27:14 -0500 (EST) From: SHADOWPUP@aol.com To: SCD-list@longisland.com Subject: Re: SCD-list V1 #101 Message-ID: <971116162714_631056510@mrin54.mail.aol.com> In a message dated 97-11-16 00:29:49 EST, you write: << >I also miss bread and today after being on the diet 5 months, will >experiment with the Lt. Bread verson of Lois Lang's Luscious Bread. >Someone on the internet group gave us this recipe several weeks ago. >Supposedly, it's best when toasted. > >Let's give it a try, huh? > >Prateeksha im sticking with the original recipe! this bread fell apart all to hell! what i would also like to try is the banana bread recipe OMITTING the bananas and the sweet stuff and see if a regular bread would turn out just as soft. may have to add another egg? dont know but want to try getting a softer bread and the banana bread would be perfect. Joan ------------------------------ Date: Sun, 16 Nov 1997 16:28:28 -0500 (EST) From: SHADOWPUP@aol.com To: SCD-list@longisland.com Subject: Re: SCD-list V1 #101 Message-ID: <971116162826_-155534985@mrin38> In a message dated 97-11-16 00:29:49 EST, you write: << 6 wks on scd nothing has ever worked this well for me. I hear what your saying though about something other than almond flour! But I can't believe spelt is any answer. Take care, Jane and we'd all be bitching without the almond flour! im thankful for IT Joan ------------------------------ Date: Sun, 16 Nov 1997 14:14:06 -0800 From: rosset@juno.com (Lucy Rosset) To: SCD-list@longisland.com Subject: Re: Tactile sensitivity Message-ID: <19971116.141647.10478.1.rosset@juno.com> >Do you think it is ok to give him some garlic, I tried some raw garlic >myself and wow, talk about die off, I only took about half a clove and >had >MAJOR die off the next day! Dear Moira, What kind of symptoms does one experience with die off? Lucy ------------------------------ Date: Sun, 16 Nov 1997 14:38:07 +0000 From: "Barbara Mills" <Barb.Mills@diablo.intergate.bc.ca> To: SCD-list@longisland.com Subject: Re: SCD, 6MP and fisulas Message-ID: <199711170016.QAA18767@diablo.intergate.bc.ca> >From: Wayne Young <wyoung@ANET-DFW.COM> > Has anyone been on 6MP for CD and fistulas and then gone on the SCD? <snip> Wayne, I have CD, three fistulas that had minds of their own and have been following the SCD since March/97. I have continued pressure from my GI to begin 6-MP therapy for the closure of fistulas. I refuse and this drives him nuts :-) In my research on this drug and it's successes for fistula closure I concluded that it works in approx. 50% of the cases...not good enough for me...the 'Drug Chicken' Hehehe. I continue to decline 6-MP. In my personal experience, fistula activity begins when my prostaglandin levels drop to nil. ( a woman thing ). I studied prostaglandin and low and behold it is a cortisone like hormone secreted from the the body to contol inflammation of the bodies organs. This finding led me to an 'alternative' source of cortisone. I tried Cat's claw.....nothing...tried Androsone.....nothing....tried veggie juicing.....nothing....read a study on the use of Omega 3 fatty acids ( Fish oil and Flax oil are good sources) as an assistant to the bodies *natural* abilities to fight inflamation........Bingo!, eight hours after trying plain ol' cheap brand fish oil I had a huge energy increase. I did this last June and played around with the dosages and as I continued the usage I also found the Omegas 3 acted well as Prednisone would and the fistulas began to settle down.. I use 4000mg of deep sea cold pressed Fish Oil per day when fistulas are not active, when they start to open up I immediately up the dose to 6000mg per day and they settle down in two days. ( This dosage suits *MY* height, weight, age and other lifestyle factors ) In conclusion ( geez, I sound like a Professor of something-or-other! ...I'm not...just a Mom with CD that is frightened of chemical drugs) I know the fish oil did not *cure* the fistula, but I like having some contol over the little buggers just the same. And in the long run the toxins of 6-MP will not be in me to interfere in other ways. FWIW! Barb Vancouver, B.C. Canada P.S. Garlic will help ward off infection when the fistulas become active. ------------------------------ Date: Sun, 16 Nov 1997 15:41:19 -0700 From: Pat Sullivan <psullivan@saleslogix.com> To: SCD-list@longisland.com Subject: RE: Tactile sensitivity Message-ID: <E0C18E118B25D1118AC000805F4B984614760E@LOGIXMAIL> See below: > -----Original Message----- > From: Mary [SMTP:moira@megamed.com] > Sent: Sunday, November 16, 1997 6:57 AM > To: SCD-list@longisland.com > Subject: RE: Tactile sensitivity > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Dear Pat, > > Thanks SO MUCH for the info about calcium lactate, I read in Elaine's > book > that children/babies may need extra calcium, so I gave him this, never > even > thinking about lactose! Thanks so much. [Pat Sullivan] Your welcome! > > I think now that you mention it she recommends calcium AEP in the > book, will > look for it. [Pat Sullivan] Actually, I don't see where she mentions > AEP specifically. This is something I read elswhere and don't > remember where. > > I need some advice on vitamins/minerals. Should I get the vitamins > from > Freeda, or is there a brand available at the health food store? Also, > do > most of you find you need a B12 shot, as in the book she mentioned > that some > people do need a boost of their B12. Does anyone have any brands of > calcium > (AEP) that they recommend. [Pat Sullivan] Personally, I am currently > using vitamins and minerals called Matrix which I get from Peak Energy > 1-800-331-2303. Like Elaine recommends, these are low dosage but are > supposed to be extremely well absorbed and are all in the "active" > forms, expecially the minerals. This company focuses on dealing with > Mercury Toxic individuals and thus they recommend very low dosages of > B12 since it is supposed to "methylate" mercury which in their minds > is bad since methyl mercury is 50 - 100 times more toxic than straight > mercury. I am not aware that I need more b12 as I have not been > tested. > > How do you know if you need a B12 shot? [Pat Sullivan] There are > tests that a doctor can do to determine levels of b12 and whether or > not you need injections. They also look for anemia as low b12 is one > of the causes of anemia > > As far as soil based and olive leaf extract, it was my understanding > that > Elaine was NOT for them. It was my feeling she was very strongly > against them. [Pat Sullivan] If so, it is not in her book and I don't > remember reading it here. I've only been on this list for about 45 > days so it could be previous to that.She obviously highly recommends > Yoghurt which carries lots of these types of bacterias into the > intestinal tract. In my case, I still cannot yet tolerate Yoghurt or > cheese and thus am missing out on this important element unless I take > them in capsule or powder form, which I do. > > Some of the parents of autistic kids are having great results with > soil > based organisms, they replace the yeast and bad bacteria in the > intestine, > so I am very torn on this issue. My best friend up in Washington is > having > great results, as are others. She gave her son SBOs and then tested > his > urine and his yeast and bad bacteria were nearly gone. [Pat Sullivan] > I would go with this if I were you! > > I am wondering if our kids have had SO MANY antibiotics that they may > need a > boost from the soil based to get rid of the dysbiosis, and then > MAINTAIN the > new flora with Elaine's diet. What does the List think? [Pat > Sullivan] I think you are correct and unless Elaine has a contrary > opinion I would go with what is working for others in the treatment of > your son. > > Do you think it is ok to give him some garlic, I tried some raw garlic > myself and wow, talk about die off, I only took about half a clove and > had > MAJOR die off the next day! [Pat Sullivan] Small amounts and then > gradually build up! Garlic is extremley effective as you discovered. > I would certainly recommend it for you but start slow and then > gradually add more! > > I read in a book on garlic that aged garlic is better for candida, do > you > know what kind to get? [Pat Sullivan] Kyolic Aged Garlic is usually > the one recommended. Most non-liquid garlic, including Kyolic powders > have non SCD allowed stuff added to it! I use a lot of Kyolic Liq. > Garlic and notice a difference when I forget to take it or when I > travel and forget it at home. The Liquid can be hidden in foodstuffs > to, or put in capsules for your son. Raw garlic in caps is also very > effective and cheap! > > His stomach is distended and hard like a balloon, even though he is > very > thin. My other kids have soft stomachs/abdomens. Would this be an > indication > of yeast or bad bacteria or both?? [Pat Sullivan] Yes, from > everything I have read. This is common symptom of major dysbiosis > including candida, bacteria and parasites all of which both garlic and > olive leaf extract deals with. I use both! > > I KNOW my son is not autistic, he has incredibly bad dysbiosis due to > yeast, > bacteria, or, some research is showing, the MMR vaccine invading the > lymph > nodes of the colon and damaging it. In any case, I need to get to the > bottom > of this dysbiosis. Soil based organisms are also curing Crohns > disease, so > my friend in Washington State said. [Pat Sullivan] Go with it! > > In case you guys did not know this, the so called "autism" diagnosis > is > absolutely booming, some say as a result of very early and very > intensive > vaccinations., which disrupt the normal immune system,which then > predispose > the baby to infections, which lead to antibiotics, which lead to > dysbiosis, > which leads to toxins in the blood affecting the brain, etc. [Pat > Sullivan] Great desciption. Our kids are being hurt at a very early > age. Consider the tremendous increase in ADD which also usually > responds very well to Diet and dysbiosis treatment! > > If anyone has any advice, I am kind of desperate, my son is stimming > (obsessing) on fans again. > > Could my giving him calcium lactate have screwed up the diet enough to > make > him worse?? [Pat Sullivan] Absolutely! Lactose is very bad! DON'T > beat yourself up over it though. You did not know and now can quickly > get back on track. Mistakes are part of the process of learning! > [Pat Sullivan] Moria, just out of curiosity, does your son have any mercury amalgams?? > What happened to the article on dysbiosis, is it coming? > > Again thanks, > > Moira, ------------------------------ Date: Sun, 16 Nov 1997 16:41:14 -0700 From: Pat Sullivan <psullivan@saleslogix.com> To: SCD-list@longisland.com Subject: Follow up to Amalgam survey Message-ID: <E0C18E118B25D1118AC000805F4B984614760F@LOGIXMAIL> Dear SCDers, I have continued doing a lot of research on mercury amalgams and the possible affect that it may be having on my own health problems. The following are some results and thoughts about this that may be of interest to you. 1.) I have had a hair mineral analysis done showing very high levels of mercury in my system. 2.) I have had what is called a DPMS mercury challenge test confirming once again that I have a very high level of Hg in my body. 3.) I had my amalgams out over 10 years ago. The doctor who tested me said that unless I have done a very determined "detox", that mercury exits the body very slowly. 4.) It is likely that my consistent eating of fish (it is supposed to be healthy and is, except for proven high levels of mercury) has continued to regularly expose me to Hg keeping my levels very high in spite of having my amalgams out. 5.) There is no question that all amalgams leech Hg beginning the day they are put in! Many, many (hundreds)of well documented studies on this. 6.) There are 2 very new studies, one done at the University of Kentucky, clearly linking mercury amalgams to Alzheimers disease and another done showing that intestinal bacteria exposed to Hg readily develop resistance to antibiotics. It is felt by many researchers that the heavy use of mercury amalgams is more responsible for antibiotic resistance than is the over usage of antibiotics themselves. 7.) Almost everything I read talks about mercury's affinity for the GI tract and is considered as a causative agent in many GI tract diseases. 8.) Hg also has a high affinity for the brain, kidney and liver and is considered to be the most toxic metal of all the heavy metals! It is a very strong immune depressant allowing for other opportunistic infections to have a field day. 9.) When I did the survey here a few weeks ago, 100% of us had amlagams, or used to have them. Only about 60-70% of the general population have amalgams in their mouth. Statistically then, THIS IS VERY SIGNIFICANT! 9.) I am NOT saying that amalgams are the cause of all our GI problems! I am saying that this research is interesting and perhaps worth considering for those of you who have not considered it before. 10.) As I have mentioned before, Root Canals can be even more devastating than mercury amalgams. 11.) It is interesting to me that Elaine says in her book that she nor anyone else knows exactly what starts the "Vicious Cycle" that we all are treating so effectively with SCD. Is it possible that mercury is one possible agent that starts it? Statistically, the growth of GI diseases mirrors the growth in the usage of mercury amalgams. The same is true with the growth of virtually all auto-immune diseases especially MS, Lupus, Arthritis. When Hg gets into a cell the immune system recognizes it as something foreign and then attacks it. If there is a lot of Hg in the cells of the intestinal tract and the immune system no longer recognizes it as "self" does it then attack it thus causing damage to the GI tract as in "leaky gut" etc. This is just a theory, but not one that I have developed all on my own. There is lots of research suggesting what I say here. I am not trying to push anything on anyone, simply trying to inform for your further consideration! Recommeded reading: It's All in Your Head, by Dr. Hal Huggins Root Canal Cover Up, by Dr. George Meinig Do and Web Search with the word Amalgam! enjoy! Pat ------------------------------ Date: Sun, 16 Nov 1997 16:46:13 -0700 From: Pat Sullivan <psullivan@saleslogix.com> To: SCD-list@longisland.com Subject: RE: SCD, 6MP and fisulas Message-ID: <E0C18E118B25D1118AC000805F4B9846147610@LOGIXMAIL> Barbara, thanks for the info. I might suggest that you use a brand of fish oil that is labeled as containing no mercury. Usually ones that say cholesterol free also have all Hg removed from them. Don't want to trade one problem for another! Just something to consider! Pat > -----Original Message----- > From: Barbara Mills [SMTP:Barb.Mills@diablo.intergate.bc.ca] > Sent: Sunday, November 16, 1997 7:38 AM > To: SCD-list@longisland.com > Subject: Re: SCD, 6MP and fisulas > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > >From: Wayne Young <wyoung@ANET-DFW.COM> > > Has anyone been on 6MP for CD and fistulas and then gone on the SCD? > > > <snip> > > Wayne, > > I have CD, three fistulas that had minds of their own and have been > following the SCD since March/97. I have continued pressure from my > GI to begin 6-MP therapy for the closure of fistulas. I refuse and > this drives him nuts :-) In my research on this drug and it's > successes for fistula closure I concluded that it works in approx. 50% > of the cases...not good enough for me...the 'Drug Chicken' Hehehe. I > continue to decline 6-MP. > > In my personal experience, fistula activity begins when my > prostaglandin levels drop to nil. ( a woman thing ). I studied > prostaglandin and low and behold it is a cortisone like hormone > secreted from the the body to contol inflammation of the bodies > organs. This finding led me to an 'alternative' source of cortisone. > I tried Cat's claw.....nothing...tried Androsone.....nothing....tried > veggie juicing.....nothing....read a study on the use of Omega 3 fatty > acids ( Fish oil and Flax oil are good sources) as an assistant to the > bodies *natural* abilities to fight inflamation........Bingo!, eight > hours after trying plain ol' cheap brand fish oil I had a huge energy > increase. I did this last June and played around with the dosages and > as I continued the usage I also found the Omegas 3 acted well as > Prednisone would and the fistulas began to settle down.. > > I use 4000mg of deep sea cold pressed Fish Oil per day when fistulas > are not active, when they start to open up I immediately up the dose > to 6000mg per day and they settle down in two days. ( This dosage > suits *MY* height, weight, age and other lifestyle factors ) > > In conclusion ( geez, I sound like a Professor of something-or-other! > ...I'm not...just a Mom with CD that is frightened of chemical drugs) > I know the fish oil did not *cure* the fistula, but I like having some > contol over the little buggers just the same. And in the long run the > toxins of 6-MP will not be in me to interfere in other ways. > > FWIW! > > Barb > Vancouver, B.C. Canada > > P.S. Garlic will help ward off infection when the fistulas become > active. ------------------------------ End of SCD-list V1 #102 ***********************
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