Letters from the SCD support group: concerning children and surgery

Date: Sun, 27 Jul 1997 19:48:09 -0600
From: Steve Hooker <aagvani@MUSE.SFUSD.K12.CA.US>

Subject: diet solved her problem.

>Hi Dale,
>My daughter had surgery as well. A combination of surgery and
>one year ( no cheating ) on the diet solved her problem.
>Good luck

Hello Benny,

It was so incouraging to read your reply to Dale. I usually lurk here without posting because I am not an IBD patient. We are on the diet because of our son who was diagnossed earlier this year. The whole reason we went this way was because it presented us with a glimmer of hope, whereas the doctors were just offering up prednisone, azulfidine, and eventually, surgery. He was diagnossed early, so if the diet does what I expect it to do for him, we will never have to deal with the surgery. He is taking fish oil instead of sulfasalazine, and he was put on prednisone when he was first diagnossed. I don't want him on that stuff again if there is any way to avoid it! Matt has been on the diet for about a month and so far, everything is going great. He doesn't even want to cheat because he is hoping that things will normalize for him after he has followed the diet for a couple of years or so, and he will be able to eat some of the foods he has given up. I don't know if it will work out that way or not, but that hope keeps him on the straight and narrow. I wanted to ask you about your daughter. How long has it been since the end of her year on the SCD,and does she still follow the diet?

Thanks for the encouragement,

Date: Mon, 28 Jul 1997 06:03:15 -0400
From: Benito Rey <brey@INTERLOG.COM>
Subject: Re: diet solved her problem.

Hi Steve,

On the diet: one year and 8 months.
Surgery:     one year
She is totally okay now, but following the diet on a 100 % basis.

Thanks for your reply


Tue, 5 Aug 1997 16:26:30 GMT

It's been a while since I wrote-busy- studying, working, and
mothering! I very happy to report on Melissa's progress(she's an active 16
yr.old with U.C.). She's been on the diet STRICTLY for 1 1/2 years and has
been off prednisone for 3 months now. Her weaning off the drug was very
slow- she seemed to react with severe headaches and feeling of illness each
time she lowered the dosage. I feel such a weight has been lifted with the
elimination of the pred.!
Our former doctor went to greener pastures in the U.S. so on our
recent visit to our new GP I outlined the diet and she seemed receptive to
it. She did send Melissa for blood work as she hadn't any testing since
hospitalization 2 yrs.ago.
Melissa has gained weight- is 5'9", playing soccer this summer and
working out at the local 'Y'. She has one solid mov't/day- life is
wonderful! There is NO DOUBT in both my and my husband's mind that this
diet has and is the reason Melissa is doing so well. She has agreed to
remain on it for one more year and then, depending on how all is , might
attempt re-introducing other foods. She is quite used to the diet as a way
of life- yes there are definitely times when she's with her friends and the
appeal of other foods is strong-more for social reasons. Thinking back to
her 2 wks on TPN and the life she had prior to hospitalization puts the
diet in a great light.
To all those considering the diet- it is certainly worth the
attempt- at least for 2 months. This is a long- term treatment -patience and
STRICT adherence to it are required. She stayed on prednisone for over 1
yr.all the while continuing with the diet. With her it was very evident
right from the start that she responded in a positve way to the diet.
Continued good luck to all!
Cathy in N.S. Canada- a very happy mother-now going to put on another batch
of yogurt!!!!

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