From: "Diehl, Steve" My gastroenteroligist. No, you're not dreaming!
From: Seth By searching the net for Wolfgang Lutz, I found scdiet.org
I was researching his work about Crohn's and Diet.
From: "rachel" Six years ago, through a patient in the office where
I work. She's heard about it on Dr. Hoffman's radio show, and told
me about it on three seperate occasions before I went out and bought
the book. Unconvinced and brainwashed to the contrary by medical establishment,
that something as simple as a diet could possibly work, it wasn't
til I spoke to someone who'd actually been on it and experienced it's
miracle firsthand, that I decided to give it a shot. Until the doctors
finally make a concession as simple, as basic, as incredibly logical,
as "there might be a link between IBD and diet", there will be a lot
of us chasing our tails and wasting precious time, our colons and
some even our lives, before finding this precious miracle. Sadly,
the woman who initially told me about the diet passed away last year,
and the woman who's restored health convinced me to try it, went off
the diet, is once again ill, and cannot/will not go back on it. Rachel
From: "Michael W" Mike: I heard about "Food and the Gut Reaction"
a number of times, starting about five years ago - including from
a couple at prenatal classes who were having excellent success with
it, but never paid much heed until - when I was desperately ill, my
wife saw Elaine on Dini Petty and insisted I try it. The rest is history.
I wish we could produce a half hour infomercial with Elaine - she
was a powerful spokesperson when I saw her on Dini. Heck, she convinced
From: "Katie" I heard about it from someone on the Canadian Crohn's
chat site. I actually responded about another post and he mentioned
the book in passing as something I might want to read (he found the
diet too restrictive for himself). I waited a few months to start
it like a dummy. I had to be really, really sick to give up my carbohydrates!
From: Kirsi: I found it from Crohn's net,,,there was one testimony
about SCD, if I remember correctly.
Kirsi (Finland, SCD 11months!) Finnish SCD website: http://wnet.suomi.net/kotisivu/kirsi.koskinen
From: "brianm" Mike: Alt.Support.Crohns-Colitis and I too waited quite
a few months before giving it a try. SCD is not easy, it is not a
pill, but I sure feel a whole lot better. Gee, is this a 'Cult'? heh
Brian CD 1971 3 PBR (74-81-83) SCD 6/00 Med Free 11/00
From: "Robert H" I was exploring the blood type diet web site..........
From: "Elaine" From Elaine In the l960's or early 70's I was in my
bedroom crying because Judy was to have her colon removed at eight
years of age. My friend, Martha, called my husband to see if she could
come over and comfort me. She lived 15 minutes away in Nutley, NJ
(original home of Martha Stewart). and on her way over she bumped
into HER friend in the supermarket and told her about my desperate
state and Judy (the second friend's child was in Judy's class). The
friend, Edith Dearling (her husband was the local pharmacist), told
Martha to tell me to call her and she would give me the name of the
doctor in NYC who saved her twins' lives at birth (born with, at that
time, too often fatalceliac disease). Herb said "no more colonoscopes,
if the child is going to die, let her die in peace." I begged and
the rest is history. Love
From: "Claire" I heard about it from someone on another
unrelated list, maybe a year or more ago. She had Celiac's and told
me about it when she heard I had Crohn's. But I was not ready to hear
it, and I knew nothing about Celiac's, didn't think they were related.
I was ignorant. Then, last spring when I got sicker, my boyfriend's
sister told me she heard about a Gottschall diet on Dr. Ronald Hoffman's
radio show in NY. That name rang a bell, so I then looked on amazon.com
and found the book, testimonials, this list, etc.
From: "Martha" I learned of the SCD from an e-mail friend on an allergy
list who's dealing with one of the same intestinal bacteria I am.
Actually I remember seeing some information about the diet on the
net a couple of years earlier, but can't remember now how I ran across
it. I obviously didn't pay much attention to it at the time. I read
that it was for Crohn's disease and since I didn't have Crohn's (or
an official UC diagnosis) I didn't think it would be helpful for me.
From: "Sarah K" I found out about the scd by searching on the internet
for info on ulcerative colitis and diet. I came upon The Healing Crow
website, and from there found out about Elaine's book. I immediately
checked the book out from the library! Thank goodness for her book
and Seth's site. Sarah Kiser, UC since 1997, scd since Oct 2000, INDIANA
From: "Cheryl W" I found SCDiet.org through the use of a search engine
after my husband had a flare and was about to turn 40 and I was depressed
about what the future held for his health! It was the testimonials
regarding improved intestinal health as corroborated by colonoscopies
on the site that convinced my husband to give the diet a try. It has
worked for him even though he is not "fanatical", and his annual colonoscopy
after being on the diet for 9 months did show remarkable improvement.
Cheryl, wife of Mark, UC ~18 yrs, SCD 10 months.
From: "Joanne" I read about BTVC on Dr. Hoffman's website
after doing a search on IBD and reading all the negative stuff about
children with IBD... He briefly mentioned the book and then we ordered
it from barnes & noble. We were so happy to read that there might
be something we could do to help and possibly prevent some of the
meds... Read it and didn't think I could EVER do it! But here it is
4 months later.... Thanks to all .... Joanne - mother of John Paul
4 mo. SCD almost 3 years old...
From: "james & charlene" I learned about the SCD two years ago from
a friend who gave me Food and the Gut Reaction. I wasn't sick enough
to stick to it and then when I hit rock bottom in October my Naturopath
lent me BTVC. I went and bought my own shortly after and then looked
up the website and I found all of you. How fortunate. Charlene F UC
2 1/2 years SCD 2 1/2 months mini-flare right now
From: "Mike F" Usenet a long time ago. My BTVC is a first
printing. Mike F [Editor's note: that first printing copy sounds like
something to consider a treasure!]
From: "Charles" After my GI said I would be on Asacol the rest of
my life and/or have colon surgery, I decided to look for alternative
approaches. I found the http://www.inform.dk/djembe/scd/ somehow with
a search engine for Ulcerated Colitis I believe. Charles UC - SCD
1998 - Symptom free currently
From: "Leslie G" Hello: I heard about SCD by researching on the Internet.
My Doc for 1 1/2 yrs stated "There may be a connection between colitis
and diet but no studies have been done. You can keep a food journal
if you want but you must take all meds until you are in complete remission."
She is on maternity leave now and is not aware that I am on SCD. I
spoke to her collegue's nurse who told me that there probably IS a
relationship between diet and colitis and that if I had changed my
diet and I have seen improvement then I should stay on it! Duh! Once
I read about SCD I immediately ordered BTVC and here I am.
Also, I got ambitious and made DCCC by the buttermilk/oven method
directions that were on this list serve a while ago. Now I have
more than I immediately need, can I freeze some? Will it be okay
when I thaw it in a few weeks?
Thanks Leslie UC 1 1/2 yrs SCD 4 1/2 wks
From: "Gina B" Found SCDiet.org on Yahoo while searching for info
From: "Paula" I learned about the scd ( for my 9 yr. old
daughter )after seeing Dr. Galland in NYC. After purchasing the book
in his office and reading it I didn't think that it would neccessarily
help her since she was a vegetarian and so I dismissesd trying the
diet for a whole two years ! But then one day I picked it up again
and reread it and said that WE MUST TRY IT , what do we have to loose
! And Thank G-D - it has helped her - dispite her still remaining
a vegetarian . I would love for her to eat some fish but she is adamently
aposed to same . She has had little flares here and there - but on
a whole the scd has greatly helped her to stay as healthy as possible.
She is not on any medication - I have always given her vitamins -
various ones here and there and currently I have her taking colostrum
twice a day ( for about a month now ) She offers no complaints - has
alot of energy - & does well in school . She does however remain slim
- something that she was never prior to this condition.
Dispite eating alot , she just doesn't get heavier. I know in my
heart that she is still in a compromised absorption state - but
we keep trying to heal her gut completely.
For certain , the scd has helped her - & THANK YOU SO MUCH ELAINE
for all your sharing - with all that you know. You are truly an
angel , & May G-d bless You Always !
From: "Rob L" I discovered it through an Internet search
engine. I just couldn't accept my DR's opinion that even though he
couldn't tell me why this was happening to me he was sure I would
probably have to stay on drugs the rest of my life. While looking
for alternative treatment I somehow ended up on the Healing Crow where
I discovered Elaine's book and this group.
I feel this group is as indispensable as Elaine's book for helping
me to fight this disease. Without the great advice and encouragement
from all of you I would never have had the confidence and discipline
to stick with the diet long enough to see the results I am currently
enjoying. I am still not 100% but I am feeling so much better both
physically and mentally and am enjoying life again.
Thank you so much to Elaine and the whole group.
From: "christopher s" I found some anecdotal references
to it on the usenet (alt.support-crohns-colitis I think) as well as
on somebody's personal IBD site, but the reviews were very mixed as
is usual in such settings (where many people will chime in who didn't
really try the diet at all or at least, never truly tried it or understood
it), so as a rsult I didn't think much of it. I was heavily into traditional
chinese medicine at the time. When I started to flare worse and worse
after a year of TCM (after some improvement over the first 8 mos.)
I started searching the internet and by chance came across a reference
to www.scdiet.org on the usenet again. It took me about three months
of reading up, lurking, ordering and reading BTVC early in 2000 before
I decided to jump in.
Christopher UC/IBS 14 years (total medfree remission 1988-97) SCD
10 mos, 4mg prednisone, 75mg Imuran
From: "Lucy R" In 1993 I saw Elaine on a TV show called "What in the
World!" out of Victoria, British Columbia. I live in the US, but close
enough to the border to get Canadian TV and radio. That night I went
out for my last pizza, and the next day started the diet!
From: "Laura P" The reviews on Amazon.com were powerful.
I wanted to educate myself about my uc since I move so much and got
too many different answers from too many doctors.
From: "christopher s" I am not surprised, but still saddened,
to notice the *sickening* fact that not one person yet on this thread
has said that their GI put them onto the SCD. Not one. And to think
those guys (and gals) are supposed to 'first do not harm.' Very sad.
Christopher UC/IBS, SCD 10mos
From: "Steve D" Christopher, I guess you missed my previous message.
My GI is the one who first told me about SCD about 13 months ago.
He said he had heard people were having success with the diet and
told me the name of the book. I ordered it that night from Amazon
and started trying to follow the diet as soon as I got the book. He
has been supportive and helpful. When I questioned what was in the
16 Pentasa I took every day, he looked it up and found starch listed.
He agreed with my decision to stop taking it. He also worked with
me to get off prednisone that I had started using for the last year
or two. The last time I saw him was in July for my 2 year colonoscopy,
which he said looked pretty good overall.
Steve UC 20+ yrs (symptoms had become much more distressful the
last 5 years) No operations SCD 13 months Med free 5 months
From: "Denise M" I found SCD while surfing the net looking
for an alternative to having colon removed for UC 12 years.
From: "Dawn" Hi, My doctor, Dr. Galland/Bolte prescribed
the diet for a parasite infection along with anti-parasitics. I found
the website in the book.
From: "Glenn N" Borders Bookstore. I read BTVC standing there
in the store! I paid for the book, drove to my fathers house, got
the 70's era yogurt maker down from the attic, and started the diet
the next day.
From: "Dave D"If anybody out there doesn't believe that God leads
people by divine intervention, then pass this one by. After having
Matt on a myriad of drugs that weren't doing anything for him, and
then hearing the doctor say that we could try one or two more things
but if those don't do anything, well, we may have to consider surgery
to remove his colon, I was determined to do something to get him off
those drugs. I sat down at the computer and this is no lie, the name
Gottschall came to my mind. To this day I've been trying to figure
out how I knew that name. Did I see it somewhere? Did someone mention
it to me? Was it God? Anyway, I typed it into the search engine. I
looked at it. Hit "search" and voila! Found the SCD site. The rest
is history. God has done some miraculous things in my life, but this
is definitely my favorite! Lisa D :-)
From: "Liz" Hi Mike, I learned about SCD on the alt.support-crohns-colitis
NG. It was your reply and Deanna's reply to me or someone on the NG
that got me to just check out the book from the library to see if
it made sense. It did and here I am thanks to you too. Now I get on
every so often and reply to folks that request diet info or seem desperate.
Thanks for the efforts of you two.
Best, Liz/CD 33 years/no meds at this time.
From: "MARK D" Summer of '99. At the bottom. In an endless cycle of
prednisone, brief remission, prednisone, etc.
Surfing the net, I stumbled upon the SCD.
I don't really remember how exactly. But through the internet;
that's the bottom line.
From: "Brenda" I also learned about SCD through the Dini Petty show,
I saw Elaine talking about this special diet for Crohn's and colitis.
But I waited and I don't know why. Then I saw her on a local station
in the Canadian city where I live, when I was channel surfing. She
said she was going to be at a certain book store that afternoon so
I went down and bought a book and she signed it and talked to me for
From: "Alpaslan" My gastroenterologist guided me to a dietitian, and
she to the SCD.
All because I asked about dietary factors. Remembering my father's
experience I refused to believe stories about "diet does not matter."
From: "John C" I found out about Elaine and the book Food
and the Gut Reaction while a subscriber to Prodigy. There was a support
group there and a I exchanged messages with a doctor in Pennsylvania
who had treated himself by using the book. It worked for him and he
suggested it to his patients as well. I think this was about 7 years
From: "Carol P"A friend of mine saw UC being discussed on the
Healing Crow. I contacted them and they told me about the scd list.
From: "Roseann" I had just been diagnosed with Crohn's when
I first came across a copy of BVTC in a health/new age store in Harvard
Square. I bought the book, but when I read it I didn't think I could
do the diet because I was on pretty much a liquid diet and I was afraid
to eat. A year later, after a resection, I decided I wasn't going
to let the Crohn's come back and started the SCD. I had been feeling
some of the old symptoms return, mildly. It took a few tries before
I could stick to the diet but the longer I've "fanatically adhered
to the diet" the easier it's become. Plus, I'm actually learning to
Roseann CD 2.5 years(officially diagnosed) unofficial-- 7/8/9 ??
From: "Charles E" I learned about SCD from a newsletter
produced by Dr. Whitaker and Jane Heimlech of 1993. My friend had
it in her garage and found it and gave it to me one year ago this
month. I wish that I would have found it in 1993. I went to Borders
Book store and they had BTVC. Sheryl Evans Crohn's 25 years-Prednisone,
6mp and Flagyl
I do agree that stress and emotions play a big part! Every flare
has come as a result of an emotional upset. A friend of mine is
a therapist and the best thing that has worked for me is to talk,
communicate and get my feelings out of my belly. Journalling is
a good way to do that along with a good friend that is a good listener.
From: "Joanna" I found The SCD in Borders bookstore. I was looking
through a book called "Complete Candida Yeast Guidebook" by Jeanne
Martin and the SCD was mentioned in it under Crohns disease as a good
diet to follow. This was a year after I had been diagnosed. I had
already lost weight and was feeling tired, ill and withdrawn. I was
lucky because the SCD diet kicked in right away. It has been such
a blessing and made me into a very happy person Thanks Elaine.
Sept 1997 CD diagnosed Sept 1998 began SCD Stopped SCD 6 months
later (accupunturist had advised me that I had become far too neurotic
about food) Aug 1999 started SCD and still going strong
From: "Natalie P" Mike - I learned about the SCD through
an article printed in a Toronto area magazine called "Vitality" which
focuses on alternative health practices, herbs, spirituality etc.
From: "Ben and Keri" I learned about scd through my chiropractor.
Keri IBS/scd-5 mos.
From: "Kevin Q" We received a copy of BTVC from a co-worker
of mine. I never knew she had Crohn's. She was horrified by the degree
of testing our son (then 1 year old) was undergoing to diagnose the
blood that was becoming more frequent. We had been told after his
first colonoscopy that it was NOT Crohn's or UC so we didn't read
the book. After Declan started deteriorating in health, growth, energy...,
we pulled out the book again to get ideas for foods that would be
absorbed more easily. At that time, he underwent a second colonoscopy
at New England Medical Center and they couldn't proceed due to the
fragile state of his body. They wanted to admit him for I've steroids.
He was 2 years and 20 days old. This was a nightmare because other
doctors and tests had ruled out ID. We started the diet that day.
With the exception of his recent flare, Declan has been healthier
in the last 3 months than since the first symptoms started at 21 days
old. Our new pediatric I has bought the book and has his staff reading
it. He is supporting us and seems pleased by all the lab work done
after 2 months symptom and drug-free. He said if this works, he wants
me to give the "alternative treatments" lecture to his 3rd year medical
students. We already had success with "good food treatments" with
our 5 year old daughter. She had 5 months of colic, chronic ear infections,
eczema, and was anaphylactic to peanuts. We started a modified diet
at 1 year old, and at age four she could eat everything (even peanuts).
She never had another ear infection and was spared the preventive
antibiotics and ear tubes her doctors had expected. Interestingly,
her food sensitivities were very similar to Declan's (dairy, soy,
wheat, yeast, chocolate, and potatoes). That's our story. I'm confident
it will have a happy ending. THANKS for all the support during Declan's
recent crisis. He is back in his Superman p.j., "flying" through the
house. I think the culprits were the augmentin and strawberry seeds.
The advice/information/encouragement from all the SCDers is invaluable!
Deborah (mother of Declan Max, 2 1/2 years IBD, 3 1/2 months SCD)
From: "Cat" I can't remember exactly.. I think that's part
of my memory problem :) I've only been on SCD for a short time. Right
before Christmas I was doing searches with my symptoms as key words
and on some website I found a reference to the book. I'm not sure
which website it was but somehow I found the SCD website. I was very
excited and I got in my car and drove to 2 bookstores but they did
not have the book. I ended up ordering it from barnesandnoble.com.
Of course, right after I got it I saw it in the grocery store that
I go to about 3 times a week. :)
Cat -Not diagnosed. Symptoms for about a year. Doctor just finished
the tests to figure out what I don't have. -Progressive medicine
doctor's appointment tomorrow. I am going to ask to have The Great
Smokies lab test. -SCD 2 weeks - I almost have my sanity back ...
From: "Gay B." Dear List, I found BTVC from the library. Loving Care,
From: "Martha J" Our family naturopathic doctor told us about Food
and the Gut reaction in the early 1990's; my husband was discouraged
after trying several other alternative type treatments and just didn't
want to give up his "favorite foods." Our doctor told him that if
he wouldn't do the diet, at least eliminate (regular) dairy, wheat
and reduce sugar. He tried, and felt better. When one of our sons
was diagnosed with crohn's in Dec. 1999, I started the whole family
on the SCD immediately. While I couldn't control a 40 year old with
a sweet tooth, I could manage a nearly nine year old, since I prepared
all his food anyway. Our soon to be 10 year old has been symptom free
for nearly a year. His advice to all you newbies is as follows: "after
awhile, you won't miss any of that junk at all." My next goal is to
get him more involved in food preparation so that he can take care
of himself for the rest of his life. My husband is impressed and trying
hard, even when faced with business travel and "bad influences" at
the office. A year ago, I had to remind myself to breathe, I was so
upset. Now I know that two crohnsies in one family means that we weren't
meant to eat what we were eating before; thanks to Elaine for saving
our lives and chasing away the incredible heartache from our family.
Very interesting news to share: I had blood tests done on my son
and myself recently to see how this diet has affected my son with
crohns and me, without IBD, one year later: absolutely sterling
results!!! Perfect in every way. I'm 41 and had a bit of a thyroid
problem since I was 37 and it is SO Gone. My cholesterol, which
was too low, is just as the doc wants it. I can hardly wait to show
the gastro doc my son's results....then again, yes, I can wait.
Keep on cooking, folks! Love, Mart
From: "Susan S" Hi Mike, I learned about SCD on the St.
Johns Celiac Listserve. Every now and then, someone would mention
BTVC and other group members would jump all over them for it. The
consensus on that list at that time was that Elaine's book was a bunch
of hogwash. Those few positive messages snuck in made me curious,
so I got the book out of the library. My initial reaction was that
SCD would be too difficult to follow. But after several months of
increasingly getting sick from the celiac diet, I bought the book
and started SCD in earnest. It was the best thing I ever did.
I think the reason the St. Johns list was so hostile to BTVC is
that so many of the regulars are involved in selling alternative
grain flour products to others on the list. They sure made money
off of me when I was active on it.
Best regards, Susan S SCD 8 months To subscribe to the Celiac List,
send an Internet email message containing:
"SUBSCRIBE CELIAC yourfirstname yourlastname"
in the body of the message (without the quotes) to email@example.com
From: "Ruth" I heard about the diet from a friend who had
also used. In all my research about IBS on the internet i never found
any reference to it so i never knew to look until someone told me
about it. *~ruth~*
From: "Alpaslan" Dear Elaine,
It was in San Francisco. Her office looked like a doctor's office,
quite professional. It is in the lobby of a medical building, close
to a major hospital where many doctors have their practice. I would
not be surprised if she is an ADA dietitian. I could check and let
you know at the first opportunity.
She offered regular weekly visits until I learned the diet. Not
having followed any diets and trusting my own self discipline, I
figured I could follow any diet without help from her, and asked
her about literature.
She said, "Basically there are two books. Normally I could sell
you both of them, but currently I am out of the one." I suspected
that that was the better book. It was the BTVC. I found it at a
bookstore in Berkeley. Then I searched the www and found Mik's site
and Rachel's wonderful list. The rest is history.
Of course in retrospect I know that I would have needed help from
the dietitian if I hadn't found the Long Island List. It has been
a total learning experience as many on this list already know.
About three months ago following your advice (and encouragement
from our dear Rachel) I asked my GI and switched to Azulfadine.
Yes, it is more effective than Pentasa, and so far no side effects.
With all the help available on this list, a little luck and a lot
of persistence I am hopeful one day I will be symptom free. In the
meantime there is steady improvement and nothing beats living with
With a lot of love and eternal feelings of gratitude and devotion.
From: "Matt" Hi Mike, through the net. I read about it on
a chat site; then searched & found the SCD library site. The amazon
testimonials helped me decide to try it.
The rest is (very healthy) history.
matt, Aus, SCD, 10 months (no symptoms now) Crohns, 8 years
From: "Benny R" Hi All, I used Compuserve - long time ago
- looking for help and information. By then I had no clue about the
diet, I knew only about Prednisone.
We were desesperated, finally an excellent guy Larry Richard -
Where the heck are you Larry? We never forget you!!!!! - recommended
me the diet and its author: Elaine.
Thanks Larry, thanks Elaine and thanks to Herb.
From: "Johanna E" I entered something like "colitis and
diet" in a search engine (askjeeves I think), and came up with either
scdiet.com or .org--can't remember which.
From: "Keith" I found out about this a few weeks or so ago. I get
the newsgroup alt.support.crohns-colitis and several had posted there
about the SCD diet and I finally went to the website and read more
about this and the more I read the more I wanted to know. So as of
last saturday I ordered the book and I eagerly await to get the book
and start to diet to getting my health and life back after 14 years
of several doctors and no hope from them and many of them wanting
to do surgery and remove my colon because of UC. Well I never let
them cause I was too fond of my colon and I'm glad I did cause from
reading from all of these testimonials I know that I will get well
and that I will get healthy and I plan on getting in shape and hopefully
I will get to accomplish a dream of mine and that is to play hockey.
I may be 34 but I have a passion to do this. I know it won't be easy
to do this diet at first because I will have to give up alot of stuff
that I like to eat and drink (especially Dr Pepper - I love it) but
my health is more important. Thanks to you Elaine, even tho I haven't
started the diet I know that it is because of this book that you have
helped many people and you are more valueable to us than any prize
that could be awarded to you.
Keith 14 years UC Still takin these stinkin' meds most of these
years but not for much longer SCD - as soon as I get the book !!!!!
From: "Julia" I read about it on the IBDsucks site in the
Diet Nutrition Thread. Another member posted the SCDiet site address
as well as answered questions being asked about diets that work. I
researched the rest on my own. I was desperate to find diet or natural
healing information because I did not buy into the "diet-has-no-effect-bla-de-bla-de-bla..."
Sincerely, Julia UC 3 yrs, SCD 5 weeks, No Meds
From: "Jean" I was looking at Amazon.com for books on Crohns
and came across BTVC and read all the reviews. Started the diet the
day I received the book. Jean Crohns 32 years SCD 7 months
From: "Ed/Roz W" Hi everyone, I learned about the SCD by
an act of G-d like some other people on this list. I was visiting
my mother when she had had a heart attack even though she said she
was fine and she was already home and she said not to come. My friend
gets a monthly nutritional newletter by Dr Wright and Dr Gaby and
the one she got the day I arrived was on Crohn's disease so she brought
it over to show me. The main article in it was about the SCD and a
story of a patient of theirs who had been doing so well on the diet
and then he stopped the diet and got sick again. It gave a little
summary of which foods were allowed and which were not. I just knew
that it would help me as at the time I was on the Yeast Connection
diet and some things that they said to eliminate (like soy products)
bothered me but I was having difficulty telling which things bothered
me. I bought the book the next day and started the diet at once and
never looked back. It took me a long time to find the web page and
email list as my copy of BTVC didn't have it listed in it. I also
didn't know that there was a web page or an email list for the diet.
I found that the list helped me immensely as I thought I was doing
the diet 100% but I found that I was making some mistakes with vitamins
and things like that and I also found that I had to fine tune the
diet and the wonderful people on this list really helped me get it
together. In Feb. I will be on the diet 3 years, I can't believe it.
Elaine, since you have been on the list I have learned so much and
I appreciate how hard you have struggled to get your message across.
I hope your reward is knowing how many people you have helped. Thank
From: "Cat" The first time I was able to drive after
getting out of the hospital, there was no good music on the radio,
so I turned on WOR (AM talk radio), and miraculously heard Elaine
on Dr. Hoffman's show!
Take care, Deborah and Max
From: "Bart & Jane" It's been so long, but I think it was
on the old IBD Sucks list. Is the owner's name Bill Richardson? Someone,
whose name I also forget, wrote to me off-list five years ago to recommend
the diet, and I will be ever grateful to him and to Elaine.
Dr Holland is back into what we call a "flare" in the latest IBD
Digest, talking against the diet and still ranting on about the
need for double blind trials. I have decided not to answer him this
time. What I do is to write off-list to those persons on the IBD
Digest who ask whether anyone has benefited from a change in diet.
Less stressful! Bart
From: "Elaine" To Roz White Yes, it is more than rewarding to hear
from all of you. But the night before last was mysterious. As I sat
her at midnight reading the succinct excerpts that Mike had put on
the SCD site news, I think I had some kind of religious experience.
It is when I hear that I get my high so thanks to everyone for speaking
up. We are on an excxiting trip - all of us. I do not think that Huxley
when he wrote "Brave New World" forsaw the help we are getting with
this marvelous internet. Love
From: "Deb" A friend of mine who knew I have Crohn's saw
an article in a free magazine in a health food store in New York City
and sent it to me. It talked about Elaine's book and I sent for it
from Amazon that day. Have been on the diet since 7/30/00 (with some
cheating during a trip to Paris and London in December). The good
thing motivationally for me was that my intestines immediately told
me that I was cheating.
Deb Crohn's since 1976 SCD 7/30/00
From: "Sumi" I was searching the Internet at midnight with
keywords and found an article by Dr. R. Hoffman on CD & UC. This article
has a Reference of BTVC. That was the night I can never forget when
our son told us on the phone after his first visit to his GI that
he has either Crohn's Disease or Colitis and that more tests were
scheduled. I spent that night on the Internet learning and reading
the horrible things which could happened with these diseases and the
side effects of medications. I was reading, crying and praying and
cleaning my eyes to be able to read. Next day I was in the library
reading the first chaper of BTVC; everything was making so much sense.
I started to feel that my prayers had been answered. Thanks God; Thanks
Dear Elaine; Thank you all on the list for providing all information
Sumi Mother of 22 years old son, diagnosed CD ~ 3 months SCD ~
2 months; reduced Pentasa from 3g/d to 2g/d, doing very fine.
From: "Midas Gold" The best thing about this thread is that
it's bringing all the newbies and lurkers out of the woodwork! :-)
(...who stumbled across BTVC on the 'Net in August of '97, bookmarked
it, then forgot about it... until almost a year later when her kids'
pediatrician handed her a copy of the book...)
From: "Bovington" I learned about SCD through a ND in Anchorage. Love,
Sammy CD ( since Feb) age 10 SCD 8 months---and what a difference!!!!!!!
From: "Darlene W" Hello everyone. I found out about SCD while
visiting the “IBD Sucks” website. They had a folder with messages
concerning the diet. I got the name of the book and looked it up on
Amazon.com and went on the diet as soon as it arrived. Unfortunately,
I went off over the Christmas holidays and wrote to the list about
whether I needed to be on the diet at all. I very foolhardily thought
that since I was off for three weeks with no ill side effects I would
campaign for Elaine’s blessing to remain off. I am starting to notice
some small problems and will return to the diet as soon as I can get
to the grocery store. The main problem I have noticed is that my mental
acuity is slipping. I cannot remember things from one moment to the
next. I will leave my office to get a file and have to come back and
look the name up again. I am on 16 Pentasa a day and I seem to remember
someone on this list saying that Pentasa causes some memory problem
and “brain fog”. Do you think it could be going off the diet that
is causing this? I have been on this dosage since a flair last June
without major memory problems. I am definitely going back on so that
I can reduce the Pentasa if not come off it all together.
I also want to join everyone else in thanking Elaine for her stamina
and fortitude in trying to help people with all the roadblocks thrown
in her way. I know when I mentioned the diet to my GI he sort of
blew me off saying “I like the yogurt idea and the rest couldn’t
hurt”. Of course, this is the same man who told me it was okay to
try the Atkins diet as long as I ate a bowl of All Bran everyday!
I didn’t have the book with me but I return to see him in March
and I will take it with me then. Anyway, any ideas as to why I am
“fuzzy” and what to do about it would be greatly appreciated. My
coworkers are having a field day with my memory. Thanks.
Darlene CD Pentasa 4000mg daily Was on SCD for 3 months – went
off over Christmas (like a goober) Going back on tomorrow.
From: "Rosa O" Hi, i'm new to this list; i learned about
scd on the st. john celiac list (even though the list owners really
don't encourage positive messages about it).
From: "Colleen M" Dear Mike, Wish I had a great and dramatic
story like Lisa's, but I don't. I just got onto Yahoo! and typed in
"Crohn's" one day, just like I'd done countless times before, just
to see what was new, and somehow ran across your web site. I don't
know why I had never come across it before. I ordered the book that
day and have never looked back. In retrospect, I'm sure I had seen
the cover of BTVC, but of course there are zillions of books out there
about intestinal problems and I'm sure I passed it off as just one
more useless theory without ever really looking at it. I was convinced
I had tried everything. I have a book called "Eating Right for a Bad
Gut," which you would think would pretty much nail it right on the
head, but of course it was no help at all and didn't say anything
new. I thought I had the healthiest diet in the world so it never,
ever occurred to me that my so-called healthy grain-and-soy diet was
*exactly* the problem. Elaine's book read like the story of my life
and I knew immediately that I had found the answer. I will always
From: "Karin" My neighbour (retired nurse) offered to drive
me to the doctor when I was so sick in the fall. She mentioned that
she had a book that she sent for from Elaine's press. My neighbour
has sent copies of the book to various friends all over the world.
Her friend in England is on the SCDiet.
For anyone who likes mayonnaise, I changed the recipe somewhat
from the book. I added capers as the final ingredient and found
it gave the mayo a nicer taste. I use it as a dip for shrimp, over
eggs, or with a little yogurt as a salad dressing. (Capers are buds
from a particular shrub. The jar's label lists waater, salt, vinegar,
and capers. This should be legal, or???) Question: I made yogurt
in a yogurt maker and left it for 24 hours. How long will it last
in the fridge? Newbie, Karin
From: "Michelle, wife of Ken" Ken was diagnosed with Crohn's
and everyone seemed to have the remedy. We tried them as they were
suggested, since we were desperate and not opposed to natural healing
One man we work with said that he had a distant family member who
had been helped tremendously with a special diet "where you eat
cabbage and stuff." (You can imagine my reaction...) I wasn't overly
convinced until he told me that SHE had found out about it through
the Dini Petty show. I asked, and he gave me the phone number of
the person's mother. I called her long distance, and indeed, she
had seen Elaine on the talk show, and called Elaine and was persuaded
to try the diet. Today her son is alive and well. And so is my husband!
I am thankful to G-d for His leading in this, as Ken's Crohn's
had gotten so bad that he went from 205 lbs to less than 170 lbs.
This is REALLY underweight when you consider that he is 6' 5". I
remain thankful to the L-rd and so grateful to Elaine.
Michelle, wife of Ken, CD Regina, Saskatchewan, Canada (Winnipeg
at the time of the above.)
From: "Elaine" Deanna said The best thing about this thread is that
it's bringing all the newbies and lurkers out of the woodwork! :-)
From: "Elaine" To Colleen from Elaine I am so glad I have lived long
enough to see that you are all (most everyone) is eventually digging
until you get the right information. You MUST THANK MIK AIDT AND MIKE
SIMONS. It was this summer that they were doing something that only
computer geniuses do to get the book mentioned more often on certain
search engines. Whatever they did must have been the reason you finally
found it on yahoo. And I kept asking for the bill so I could pay the
expense of it and, evidently, Mik's INFORM company covered it. Boy,
do we have brains on this list. Don't forget that Mike is getting
T shirts printed with BREAKING THE VICIOUS CYCLE!!!!!!
From: "Mick W"I learned about SCD from alt.support.chrohns-colitis
From: Midas Gold > I sat down at the computer and this is no lie,
the name Gottschall > came to my mind. To this day I've been trying
to figure out how I > knew that name. Did I see it somewhere? Did
someone mention it to > me? Was it God? Anyway, I typed it into the
search engine. I > looked at it. Hit "search" and voila! Found the
SCD site. The > rest is history. God has done some miraculous things
in my life, > but this is definitely my favorite!
...Well, considering that the name Gottschall is derived from the
German for "Servant of G-d" or "G-d's echo"...
I don't remember seeing the original post on this so I don't know
exactly what was discussed. However, this is how I am dealing with
my GI. After a colonoscopy 2 months ago, my GI scolded me for not
being on maintenance meds, employing the usual scare tactics about
the risk of cancer, etc (which worked to some degree). He wrote
a prescription and I indicated I would go ahead and take them. I
was still in a daze from the anesthesia from the procedure and still
was not aware of SCD and the alternative that existed for me.
I found SCD a couple of days after the colonoscopy and began it
as soon as I could locate BTVC. My GI had recommended a follow up
sigmoidoscopy in 2 months and wanted me to get weekly blood tests
to monitor the effect of the Asacol he prescribed (another reason
I am loathe to take meds).
I wanted to try SCD before going on meds again. Not only am I not
crazy about taking meds but I wanted to know for sure whether it
was the diet that was working or the meds.
I decided to write to my GI so that he would understand (hopefully)
exactly where I was coming from, and so that he could not derail
the discussion about diet. In the letter, I reminded him of the
last visit and his recommendations re: meds. I told him about the
SCD and enclosed a three page synopsis of the science behind the
diet I found on scd.org. I gave him the website address and told
him I would be more than happy to send him a copy of BTVC.
I said, "I know it is your opinion that diet has nothing to do
with this ulcerative colitis. While I have the utmost respect for
your professionsal opinion, I hope you will understand that this
is something I must find out for myself before resigning myself
to a lifetime of medication." I told him that I hoped he would continue
to follow me for routine colonoscopies/sigmoidoscopies despite my
decision not to take medication at that time.
I think that in writing, I was able to fully explain my point of
view without having him belittle the role of diet before I was able
to fully explain the rationale. At the same time, I hope I was able
to assure him that I still valued his opinion (except as it relates
to diet and UC, of course!) so that our doctor/patient relationship
He has not responded, and I did not expect him to. I do not expect
him to approve of my decision to treat myself through diet and nutrition
instead of medication, but I do not need his approval. I get my
support here, from all of you and the glowing testimonials that
appear on this list daily. What I do need from him is his ability
to perform diagnostic exams to monitor my condition from time to
Sorry for being so long winded and I hope this is responsive to
the original post.
Best, Deborah C.
From: "Judy G" I wandered into a health store on Yonge near
College in Toronto not long after my diagnosis for CD (1996). I flipped
through BTVC and decided that omitting breads etc would be too difficult.
A few weeks later, I thought about it again and decided to buy the
book. My husband was so supportive in my efforts and that helped me
tremendously as I began my experiment with the diet. I had no symptoms
at the time (except for pred symptoms), and have had no episodes since
either, and have been off drugs for over 4 years.
I was delighted to find the SCD on the internet several years ago
and keep tuned in for continuing motivation. I am doing really really
well and never want to forget why.
From: "jeffrey B"
I first heard of the diet when I was in San Diego in '98. The diet,
book and author were mentioned by the host of a weekly radio health-talk
show called "The Nature of Health", hosted by Don Bodenbach.
I had become quite unwell by the end of '97 and was in a crisis,
desperately searching for solutions. I had had another major health
crisis in my life in 1975 at age 24 and I had never really felt
well for most of my life but I still had no diagnosis. NO doctor
had ever been able to help me, only hurt me, so I was instinctively
staying away from doctors.
So when I glanced at BTVC at a local heathfood supermarket, I ignorantly
dismissed it as too extreme for me to follow (At this point I still
had no idea that an intestinal disease was the root cause of all
About a year later I diagnosed myself as Celiac and went on a gluten
free diet. I was living in Sacramento then and also heard Dr Hoffman
mention the diet and the scdiet.com website on his radio show. I
soon started adjusting my diet to be more in line with the sc diet.I
finally went on the diet,following the book, in July of 2000 and
everyday I am grateful for Elaine's work and continuing participation
and for this great list and I try to spread the word when I get
"Jeff B" Portland OR self diagnosed celiac 18 months
scd 6 months scd approved homemade yogurt 2 weeks(I'm cookin'now)